Advocacy & Leadership Skills

When I look at my daughter today and think of how far we’ve come- that is why I advocate for other children and families – because when you are up to your neck in the mundane battle for your child’s life at the table, taking them to specialists and fighting with insurance companies – you do not have the time or knowledge to take that out to the world. Your world becomes your child’s health. But, for that family- one person’s advocacy can change their lives. That is why I advocate for Homocystinuria (HCU), metabolic and children’s healthcare.

-Story from a parent advocate

Resources : Advocacy Basics

What do you need to find?

Self-Advocacy For All: Stories from Self Advocates

Research and Training Center on Community Living at The University of Minnesota

Wrightslaw Home

Provides information about special education law, education law, and advocacy for children with d

Voting: It's Your Right

The Boggs Center on Developmental Disabilities

Tools for Advocacy

Family Voices of California Advocacy

Assumptions

Video about a woman's struggle with muscular dystrophy and the assumptions people make about her<

WikiAdvocacy

Provides information on founding and growing an advocacy organization from fundraising to detaile

Resources : Leadership Skills & Trainings

What do you need to find?

Urban, Underserved & Unbelievably Powerful!

Parent Leaders of CYSHCN Parent Leadership Presentation

Leadership Training for Special Education Advisory Committees

Building Local SEACs for Better Special Education Services and Student Outcomes

Pasosprograms's Channel- SPANISH

Videos on skills to educate peers, facilitate access to resources, and bring ideas for change fro

Partners in Policymaking®

Online e-courses on advocacy, policymaking, and telling your story

The Art of Collaboration and Negotiation

Family Navigator Training from Family to Family Network of Virginia

Resources : Getting Involved as a Parent

What do you need to find?

Resources : Tools for Sharing Your Message

What do you need to find?

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