Advocacy & Leadership Skills
Maternal Depression: First Steps Families and Advocates Can Take to Help Mothers and Babies Thrive
National Institute for Children's Health Quality
Assumptions
Video about a woman's struggle with muscular dystrophy and the assumptions people make about her<
The Life Rope : Engagement of Diverse Populations for Recruitment and Representation in Genetics
This is a paper about methods of including diverse communities and underserved populations in pla
Speak Up - A guide to self-advocacy
The Arc of Washington
Self-Advocacy For All: Stories from Self Advocates
Research and Training Center on Community Living at The University of Minnesota
WikiAdvocacy
Provides information on founding and growing an advocacy organization from fundraising to detaile
Voting: It's Your Right
The Boggs Center on Developmental Disabilities
Believe to Achieve Worksheet
A worksheet for parents and their children about setting and reaching goals
Civil Rights and Advocacy Resources
Kids as Self Advocates (KASA)
Creating a Patient and Family Advisory Council: A Toolkit for Pediatric Practices
National Initiative for Children's Healthcare Quality (NICHQ)
Empowering Leadership A Systems Change Guide for Autistic College Students and Those with Other Disabilities
Autistic Self Advocacy Network (ASAN)
Tools for Advocacy
Family Voices of California Advocacy
Pasosprograms's Channel- SPANISH
Videos on skills to educate peers, facilitate access to resources, and bring ideas for change fro
The Art of Collaboration and Negotiation
Family Navigator Training from Family to Family Network of Virginia
Partners in Policymaking®
Online e-courses on advocacy, policymaking, and telling your story
Urban, Underserved & Unbelievably Powerful!
Parent Leaders of CYSHCN Parent Leadership Presentation
Leadership Training for Special Education Advisory Committees
Building Local SEACs for Better Special Education Services and Student Outcomes
Board Member Agreement Form
Family Connection of South Carolina
Video Presentation on Parent Advocacy
Diana Autin from the Statewide Parent Advocacy Network (SPAN)
Making an Impact: Representing the Family Voice on Committees and Advisory Councils
Statewide Parent Advocacy Network
Family Guide for Serving on Groups that Make Decisions
Wisconsin State Professional Development Grant (SPDG)
Parents as Presenters Workshop Participant Guide
Pennsylvania Natural Allies
Creating Effective Brochures
Genetic Alliance
Further Your Mission: Using internet tools and Social Media
Parent to Parent of Georgia
Social Media 101: How to Get Started with Facebook and Twitter
Family Voices, Contact: Jennifer Akers, [email protected]
Advocating Through Letter Writing
Parent to Parent NYS-Family to Family Health Care Information Center
