Advocacy & Leadership Skills

When I look at my daughter today and think of how far we’ve come- that is why I advocate for other children and families – because when you are up to your neck in the mundane battle for your child’s life at the table, taking them to specialists and fighting with insurance companies – you do not have the time or knowledge to take that out to the world. Your world becomes your child’s health. But, for that family- one person’s advocacy can change their lives. That is why I advocate for Homocystinuria (HCU), metabolic and children’s healthcare.

-Story from a parent advocate

Resources : Advocacy Basics

What do you need to find?

Wrightslaw Home

Provides information about special education law, education law, and advocacy for children with d

Self-Advocacy For All: Stories from Self Advocates

Research and Training Center on Community Living at The University of Minnesota

Believe to Achieve Worksheet

A worksheet for parents and their children about setting and reaching goals

WikiAdvocacy

Provides information on founding and growing an advocacy organization from fundraising to detaile

Assumptions

Video about a woman's struggle with muscular dystrophy and the assumptions people make about her<

Voting: It's Your Right

The Boggs Center on Developmental Disabilities

Resources : Leadership Skills & Trainings

What do you need to find?

Urban, Underserved & Unbelievably Powerful!

Parent Leaders of CYSHCN Parent Leadership Presentation

The Art of Collaboration and Negotiation

Family Navigator Training from Family to Family Network of Virginia

Pasosprograms's Channel- SPANISH

Videos on skills to educate peers, facilitate access to resources, and bring ideas for change fro

Partners in Policymaking®

Online e-courses on advocacy, policymaking, and telling your story

Leadership Training for Special Education Advisory Committees

Building Local SEACs for Better Special Education Services and Student Outcomes

Resources : Getting Involved as a Parent

What do you need to find?

Resources : Tools for Sharing Your Message

What do you need to find?

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