Communicating About Your Health
Care Coordination Notebook: Financing and Managing Your Child’s Health Care
Partnership for People with Disabilities and Parent to Parent of Virginia
Speaking Up for Better Care
The Oley Foundation
Care Coordination Resources
Family Voices Indiana
Being a Good Patient
The Oley Foundation
In Our Own Words: Using Family Stories to Teach Family Centered Care
Parent to Parent of Vermont
My daughter, Alana, was born with a chromosomal difference, Tetrasomy 9p. I wrote a story about Alana’s uniqueness to share with her peers. I used it to share her story with her cousins, classmates, and children at her after school program. The story is only 8 slides long, but it packs a huge message about understanding each person’s individual needs.
-Story from a parent advocate
