Communicating About Your Health
In Our Own Words: Using Family Stories to Teach Family Centered Care
Parent to Parent of Vermont
Speaking Up for Better Care
The Oley Foundation
Care Coordination Notebook: Financing and Managing Your Child’s Health Care
Partnership for People with Disabilities and Parent to Parent of Virginia
Care Coordination Resources
Family Voices Indiana
Being a Good Patient
The Oley Foundation
My daughter, Alana, was born with a chromosomal difference, Tetrasomy 9p. I wrote a story about Alana’s uniqueness to share with her peers. I used it to share her story with her cousins, classmates, and children at her after school program. The story is only 8 slides long, but it packs a huge message about understanding each person’s individual needs.
-Story from a parent advocate
