Access to Healthcare

Access To Healthcare

When we found out our son was going to have Cooley’s Anemia, we started educating ourselves about that genetic disorder and the treatment he would require. I discovered there would be a considerable health care cost and researched potential ways to address this issue. I decided I would try and improve the system (healthcare) not only for my son but also for other families. Since that time (23 years ago), I have been involved in advocacy through several organizations and continue to write, call, and advocate for accessible, quality, and affordable healthcare.

-Story from a parent advocate

Resources

What do you need to find?

Secondary Transition Toolkit

Pennsylvania Youth Leadership Network

Talking With Your Doctor and Other Health Care Professionals

Institute for Child Health Policy at the University of Florida, Health Care Transition Initiative

Advocacy Tip Sheet

Kids as Self Advocates (KASA)
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